Fuzz's Hospital-Legal Blog

Discharge Meeting

2008-10-23T07:18:00.002-04:00

*Yesterday the family showed up at the hospital to have a meeting with the discharge people on a plan of action to bring me home. The family is in hopes that bringing me home will wake me up and get me moving again. Tammy, Cheri, Jaye, and mom were there. It seemed to go ok. There are a few things that need to be done before they can come to the house and say that I can come home. Jaye and Cheri need to get trained on helping take care of me in case it is needed. Let's all keep our fingers crossed.

Home

2008-09-17T15:15:00.002-04:00

*The doctor currently has said I can go home. I am waiting for the "Judge" to approve the paperwork that got sent to her. Brad Stramm came and picked up the paperwork to begin with. We don't know why. No one hired this man, he just showed up one day. These lawyers are just looking for money. I want to go home. Every time someone mentions going home, I just light up.
*My family is getting things ready so I can come home. The house is going well.
*My older brother's friend Rodney has been coming and doing reflexology on me. It has really helped out. My right arm which wouldn't budge at all, was straightened out in ONE session!! Why don't more medical center embrace this kind of healing?
*The doctors did a scan on my right lung. They don't know if it is an infection or scarring tissue from the chest tubes. Do these people know anything?

Medicare

2008-07-10T15:26:00.002-04:00

*The hospital wants my guardians to sign papers over to them so I get moved from floor 10 to floor 5 of the hospital. If they didn't the hospital threatened that they would sign me out of the hospital AMA (against medical advice). Floor 5 of the hospital is disgusting. There is no way I am getting moved to floor 5. Apparently this all has to do with bills from the hospital and Medicare won't pay because the HOSPITAL keeps messing paperwork up. Makes you wonder. Plus, my doctor does not want me on floor 5, so this is all a very weird scenario I must say.

PIC Line and Trach

2008-06-11T00:26:00.001-04:00

*They took the PIC line out of me over the weekend. They are also supposed to be plugging my trach and taking it out. Apparently I am doing better than they expected.
I am not giving up without a fight. Two years in the making.

Update

2008-06-03T14:08:00.002-04:00

*Today my family found out that I have a "ventilator trach." I cannot breathe out of my mouth or nose because of this. My family was not informed that the hospital put this in me till today. It has been in for a few weeks now. I was fine on the other trach. This was supposed to be a big secret that the hospital had. Today we found out though.

Update

2008-05-21T13:47:00.003-04:00

*They changed my team of doctors so now I am awake. I am sitting in my chair. I am a little spacey at the moment, but part of that has to do with the medication till it gets settled and my body gets used to it again.
*My family and I celebrated my 25th birthday on May 5. Everyone brought balloons. My sister Tammy brought one that sings!
*My family talked with the patient advocate about how they feel my care should be. We are hoping this did some good.
*My mother has been staying with me pretty much 24/7.

Wedding...

2008-04-22T15:12:00.002-04:00

*The girl that did this to me, Abby Rice, got married on Sunday. Her new name is Abby Renaldo, or will be. So much for love......
*I am still sleeping till the hospital regulates my seizure medication. The initial medication needed to stop my seizures was a lot to get my body to relax and calm down. So, now the hospital has to bring it back down and find a happy medium.

Funeral Home

2008-04-17T07:01:00.002-04:00

*Well apparently, my family has to make funeral arrangements for me at a funeral home in order for me to get financial aid from Medicare. They went and did this last night. Very tough on my older brother and older sister Cheri. This was not something they wanted to do, but it had to be done.
*My seizures have subsided. Just waiting to regulate the medication to keep my weight up and continue on the family's plan to get better. Any kind of better than it is now....

Update

2008-04-02T20:34:00.002-04:00

*My seizures have subsided, with minor ones till the hospital regulates my seizure medication. This would not have happened if they were monitoring my levels. Nothing I can do now however. Just will take some time (...always takes time....) till I get back to my old self.

*On another note, this story came up: Story
I want all of you to go to this site to rate your hospitals. The link is in the article. Thank you very much!

Seizures

2008-03-29T15:33:00.002-04:00

*Yesterday morning I started to have seizures again. This apparently started because of several factors:
1) With the increased intake of food, and having diarrhea, my anti-seizure medicine was not being absorbed
2)The clinicians were not monitoring my level of anti-seizure medicine to ensure that it was still there and working. The neurologist said they should be checking this weekly to make sure that it is still effective in nature and things like this do not happen.
*I have gained 15 pounds as a result of them upping my intake of food. I was emaciated due to the clinicians not feeding me according to weight and height. I look better despite my seizures I experienced.

***More to come as this unfolds***

Catheter

2008-03-24T16:54:00.002-04:00

*Today my catheter backed up. The hospital has not changed my catheter in a long time. As a result I was peeing blood. Urology does not want the catheter to come out, but the rest of the staff has not done the rest of their part by trying to make sure that this does not happen. This has happened before because they refuse to change the catheter on a regular basis. Luckily my mother was there to catch this. When can the neglect finally stop?
*My sister Cheri and my brother Kenny have a meeting with Leigh Anderson tomorrow to go over the financial papers so they have control over my finances. This may help me get out of ECMC and speed up the process. Let's hope.
*My mother got a hold of Kaleida and they are looking into taking me. I cannot leave a hospital setting yet, but this might be a better place than ECMC. ECMC keeps lying to other facilities about my level of care so that these facilities do not want to take me as a patient. We don't know exactly why they are doing this. Possibly a liability issue and risk in letting me go.

Family Meeting-March 13, 2008 with doctors from ECMC

2008-03-22T23:59:00.004-04:00

*The family met with the doctors and discussed many of my needs and what the family plans on trying to help me with to get me to improve. Among the things that were discussed:
-My weight is below (well below) what it should be for a 6'2'' man. Currently I weigh approximately 117 pounds. I came into the hospital weighing in at about 160. My sister Tammy came with information about proper weight, calorie intake and fluid flushes and what they should be. The doctors said this will be addressed and hopefully I will get the food I need to gain weight back on me which in turn will help me gain strength to keep fighting.
-Respiratory therapy came and did tests on me. They showed the family as well as myself some exercises to do to try to gain back some lung capacity. There have been plenty of lung infections as I have one now.
-Respiratory therapy wrote orders to downsize my trach and plug it for a trial period to watch my O2 levels. (Since this meeting, they have done so and I am doing better with the trach being plugged than when it wasn't. My O2 levels have gone up and you can hear me trying to talk)
-Speech, Occupational, Physical, and range of motion therapy are to come in to assess what level of care I can receive to gain muscle mass and mobility back.
-Urology is to be in to do tests to see if I can go to the bathroom on my own instead of having a catheter. The catheter just causes urinary track infections anyway because they never change it.
-I am to be taken out of bed 2-3 times a day. I cannot leave the floor however, but getting out of bed is good.
-The nurse practitioner that has been a problem has been removed from my case because she has been a problem to the family since she has been on the case.
-There is going to be another meeting in a month or so to continue discussing my care and where to go from here.

*Hopefully this will help, but it can't undo what this hospital had done to myself and my family. From past experience however, the hospital tends to say one thing to appease the family and not follow through with what they say. The only time that things are done when they say they are going to do them is when it costs me money, such as surgery, and they are on the receiving end of the funds.

New Post

2008-03-19T02:09:00.003-04:00

Sorry about not updating. I (Jaye) have been working and doing school so I will get the latest update up as soon as possible. Thank you everyone for their patience.

Meeting with doctors cont.

2008-03-08T15:35:00.002-05:00

*The doctors rescheduled the meeting with the family at 10am Thursday March 8, 2008 to discuss my health.
*My mother heard me say "My stomach hurts" the other day. Very loud and clear. Hopefully this meeting with the doctors will help my progress along and get me out of ECMC.

Meetings with doctors

2008-03-08T01:24:00.001-05:00

*There was supposed to be a meeting (March 5th) with the doctors to tell the family where I stand as far as my health and where to go from here. Also, to make a plan to try to get me out of ECMC. Apparently my case isn't important enough because the doctor called and said that they couldn't make it to the meeting. Soon this happen hopefully. ECMC has treated our family as well as me like crap.

Random Things

2008-02-22T03:17:00.003-05:00

*My sister and brother went to class for the guardianship thing. It wasn't as bad as Joan Warren had made it out to my uncle.
*I have been getting very angry with a lot of people lately. No one quite knows why.
*The hospital yelled at my mom and took my wheelchair away. Why? Because they thought my mother was feeding me. Come to find out, they found applesauce and a spoon in my bed. It was from one of the other staff members trying to do a swallow test on me. My brother, my guardian, told them if they have a problem with my mother to not take it out on me. This is very true because this is what they have been doing all along. They get mad at my mother and abuse me as a result. How can this be ethical?

Waiting Period

2008-01-30T07:02:00.000-05:00

*My sister and my brother have to go for "guardianship classes" on the 7th. We are waiting for this to happen so guardianship gets turned over for the temporary period.
*In the meantime, getting a hold of the "old" guardian to get a hold of paperwork for my bills and financial situation has been hell. Just as before, she will not return phone calls so we may have to try to get a hold of someone who will make her do this. Is she this incompetent? Suspicions arise that she may do so to say that the family is not capable of handling guardianship. We shall see.
*I was very mad at my mother the other day. Being able to not communicate very well, I was able to show it very well regardless. The family couldn't figure out why I was mad however. I was trying to talk and was moving up a storm however. This is a good sign. Shows I will fight and keep fighting to get better so says the doctors.

Court

2008-01-17T07:13:00.000-05:00

*Court was yesterday. The court finally turned over guardianship of me to my sister Cheri and my brother Kenny. This is a temporary thing for 90 days to see if it works out. There is a lot to be done and a lot to go over as far as my care goes. Paperwork as well. Hopefully my family can do this. Court was not easy though. Everyone keep me in your prayers because the ride has just begun.

Lawyers call

2008-01-15T10:55:00.000-05:00

*The lawyer called my mother today to tell her that the court evaluator decided to have Cheri as guardian. This is good for me, but my mother doesn't think so because she wants control over the situation. My mother is worried about Cheri's husband, Dan, because my mother feels that in the past Dan has shaped and influenced too much of Cheri's decisions. This may be true, but we don't know for sure. Either way, Cheri is there and cares about me and that is what is important. Well hopefully the family can work this out. If Cheri didn't show up, the case would still be going on. Of course the judge still has to rule on this tomorrow. My mother can bitch all she wants but at least I have a guardian in the family if the judge rules with the court evaluator and not Leigh Anderson. My mother and my sister will have to learn to work with each other and talk and listen. This may be the hand of god stepping in to say now is the time to clear things up. Who knows. Everything happens for a reason.
*On another note, I have water on my knee for some reason. My knee was about the size of a grapefruit till they had someone come down and drain it. My mother asked about if they were going to do anything for it. The nurse she asked just said, "I guess we will have to amputate his knee." ~as a side note, I, Jaye, wonder if they said that with Fuzzy there. I can't imagine what would be going through Fuzzy's head if they said that right in the room!!~ Some of the nurses and staff at ECMC are very insensitive.

Court on Thursday

2008-01-05T17:00:00.001-05:00

*Thursday my family went to court again for guardianship over me. The lawyer talked to all of them and then the court evaluator talked to each of the family members, one by one. First Tammy went, then Kenny, Cheri then Jaye. The evaluators each had a set of questions they wanted to ask each of them. "Your father has alzheimers?" "What if you and your mother did not agree on the care for your brother, what would you do?" "Have you ever been arrested?" "Would you have a problem moving out if your mother told you you had to?" These questions were nerve wracking, but they all got through them.
*The family has to go back on the 16th to get a final judge's ruling on who should be the guardian over me and my care/assets etc.

*Today is my sister Jaye's birthday. She is going to come see me so I can sing Happy Birthday to her.

New Years Eve

2008-01-02T14:07:00.000-05:00

*My sister Cheri came in on New Years Eve and we celebrated new years together. She brought in a hat and a noise maker. I tried to blow the noise maker and move it with my hand. I brought my hand up past my shoulder to try to move the noise maker.

*I hope this year goes way better than last year. Court is tomorrow. Let's hope they all show up with their yellow bellies.

Christmas

2007-12-27T16:27:00.000-05:00

*Christmas was good. I was very tired most of the day however. Everyone came to see me.
*My older brother had me standing on my feet on Christmas. He says he plans on doing it every day to get my strength up.
*My sister Cheri bought me a plaid green and blue blanket.
*My niece bought me a superman PJ's outfit.
*My sister Jaye bought me an artist's cat. I may not be able to use it now, but she hopes someday.

*Court is next week Thursday. Everyone wish the family luck.

Christmas Eve

2007-12-25T01:37:00.001-05:00

*I know it is no longer Christmas Eve, so Merry Christmas! But, my sisters came in and read the bible to me for Christmas Eve mass seeing as I couldn't go to church. I got to hold the bible.
*I am not feeling so great lately. They have me on a new medicine to see if it helps. The trach brings in a lot of bugs into my system and makes me sick, yet they don't want to take it out of my neck.
*My sister Cheri brought in my Christmas tree from last year. Hopefully no one steals it at the hospital because the people at the hospital have been known to steal things namely, my cross I had on the wall and MY GLASSES! So, here is to hoping there is still some decent people out there.

*Merry Christmas everyone and I will keep you in my prayers as I know you do me.

Nursing Home Status

2007-12-24T03:07:00.000-05:00

*I was put back on nursing home status the other day. Apparently the infections have left.
*Alden won't take me back so said a nurse at ECMC. People want to give my mother a hard time, she will do the same for them. It is how she is. And, even though it can be frustrating sometimes, I do still love her for it.
*Tomorrow is Christmas Eve and my sisters will be coming in to say some Christmas Eve sermon stuff. My sister Jaye is an ordained Reverend. Even though I wish I could go to church. Maybe they can take me down to the Chapel

Talking more

2007-12-13T12:38:00.001-05:00

*Yesterday I was able to get a few words out past the trach I have in my neck. My mom heard me, my brother and the lady who was on the other end heard me. I was able to say hi *the lady's name* and tell them I was tired. Just another step forward. One step at a time. ... maybe I'll watch that movie-Kris Kringle the claymation movie. . . . with the song "Put one step in front of the other"
*They tried to take me off of my ampicillin medicine which ended in me getting a temperature again.

Court = Crap

2007-12-06T17:22:00.000-05:00

*Today my family had court for my guardianship case. Everyone showed up-Tammy, Kenny, Cheri, Jaye and mom. They had called the lawyer that is supposed to be representing my mother a few minutes before a "court clerk" came out to tell them the case was being adjourned till January (2nd or 3rd). This was just a little before two o'clock. Mind you when they called my mom's lawyer, his assistant informed them that "He was on his way that everyone was running late, but he should be there shortly." The court however was informed way before this time that the lawyers were not showing up at all. My brother tried to speak on everyone's behalf stating that everyone has tried to get in contact with the lawyers but it is very difficult because no one calls back or acknowledges that they are there. He said this in response to Judge Sconiers stating that they (my family) needs to get in contact with the lawyers to make sure they inform them (my family) of when court is and is not happening. Other than this, they had no room to talk. The family is going to be doing a bit more digging on this and write some more letters. This is ridiculous. How can a guardianship case take A YEAR to figure out. A YEAR. In the meantime, I lay in the hospital bed because my so called "guardian" (Leigh Anderson) doesn't care about me and lets me lay there. She don't see the progress I have made and don't care to know either way. No one out there to help my family win back guardianship over a very corrupt system? Please God send someone our way....
*Here are some court cases that might be of some interest:

Matter of Nasquan S., 2 A.D.3d 531 (2nd Dept.)
Petitioner was the AIP’s mother. She sought to be appointed guardian and to have the attorney
appointed as co-guardian. The trial court refused to appoint the attorney as co-guardian and
instead appointed a third party stranger. In reversing the trial court, the Appellate Division
stated: “The case law in this firmly establishes that a stranger will not be appointed as guardian
of an incapacitated person “unless it is impossible to find within the family circle, or their
nominees, one who is qualified to serve.”

Matter of Bertha W., 1 AD3rd 603 (2nd Dept. 2003)
Appellate Division modifies order to eliminate appointment of non-family member co-guardian
of the property stating that there is a preference for family members unless it is impossible to
find a qualified family member to serve and that there was no showing that the AIPS nephew
required a co-guardian to assist him in carrying our his duties.

Matter of Joseph V., 307 AD2d 469 (3rd Dept. 2003)
Court finds that although there is a preference for family members, court appoints independent
guardian after considering factors including: the strained relationships between AIP’s family
members; the substance abuse problems if all the family members, the families unrealistic vies
of th AIP’s condition, the plans of some family members to move the AIP out of a nursing
home to his detriment, some family member’s disregard for the AIPS wishes to forgo life
support measures and the possibility that other family members may be quick to terminate life
support.

Good things

2007-11-28T17:59:00.000-05:00

*Today my older brother Kenny had me sitting up in bed for over an hour today. I cannot sit up by myself yet, but for the most part I can sit there with little help.
*My heart rate was down today for the first time since the accident happened to about 70. The doctors say this may be due to the fact that I might be getting better and the infection is finally leaving my body. Let's only hope.

*Everyone keep me in your prayers. God eventually answers when enough people knock on his door and they keep on knocking.

News

2007-11-27T08:52:00.001-05:00

*One of my older sister Cheri's friend had passed away back in 2002. Her name was Patience Lucas. She was recently on the news and the link between her death and ECMC and could there have been anything done to prevent it. There are people who care for every single one of the people in the hospitals. This probably is not the first time this has happened. There are others we speculate. As we can see, with news coverage, this is not the first time blatant neglect from the hospital and its staff has happened.

You can find the article from the news coverage here: News Channel 4-Patience Lucas

Another day...

2007-11-27T05:41:00.000-05:00

*Yesterday afternoon my sister Jaye came to see me. I was trying to talk quite a bit. I moved my arm and my legs. I was drooling when she came in. She told me to keep doing my tongue exercises that it might help.
*I had a hard time breathing. The nurse came in and said that I needed to be suctioned because my O2 levels were at 76. My temperature was 99.2. They suctioned me and my O2 levels went back up to 94 at 40% oxygen. Apparently a lot of mucous came out.
*After being suctioned I was mad and tired. So I really didn't try talking to anyone after that.
*The infection doctor came in to examine me. She seemed alright but who knows with that hospital.
*There is an employee at the hospital that had a family member go through the ping-pong fiasco that we have gone through between them and the nursing home. The employee said she is quite upset because she thought she would be treated better because she is an employee there. As a result the employee's relative has to go to dialysis three times a week. Interesting fact.....

Ping-Pong AGAIN!

2007-11-25T16:38:00.000-05:00

*I got moved back to ECMC on Thanksgiving. I got moved because I had a high temperature. I still have a hint of pneumonia, I have no idea why they moved me.
*I told my sister the other day that my fingers hurt because of the blown IV that I had in my hand. It always seems to blow there... don't know why they insist on putting it in that hand.
*With me getting moved to ECMC on Thanksgiving, my family is celebrating Thanksgiving on Sunday because of the set back.

Nursing Home

2007-11-20T13:54:00.000-05:00

*I am getting moved back to Alden today despite the state specifically not wanting me to go back to Alden. This is getting weird.

IV's

2007-11-19T20:03:00.001-05:00

*My vein with my IV in it ended up blowing up like a balloon the other day. What a crazy day that was!
*My favorite holiday is coming up. I am just sad that I can't share Thanksgiving at home with my family.

ECMC

2007-11-15T22:34:00.000-05:00

*I am still at ECMC. My temperature was 98 today. My normal temperature is about 97 so its not too bad.
*With all the medicine they are giving me, I am feeling rather lethargic and tired. At least they are finally doing something about my infection however.
*Not much is going on at the moment. Waiting game for court on the 6th of December.

County Home

2007-11-13T18:25:00.000-05:00

*The state called my mother today and let her know they are not happy with me going from the nursing home in Alden to ECMC back to the nursing home in a 24 hour period. They want my family to look into getting ECMC into the brand new home in Chautauqua county. The state said they are a better facility.
*The hospital had me listed as mentally retarded which is not the case. They cannot, and have not assessed me to say such a thing.
*The hospital also has me listed as not being able to sit in a wheel chair. This is also not correct. I can hold my own head up and sit without sliding out of the chair.
*The state also said we should get a hold of Neighborhood Legal Services to try and win this case against the guardian whom of which is not doing her job at all. I could rot and she wouldn't care, but just collect my money.

On-going

2007-11-10T20:42:00.000-05:00

*My sister Cheri tried to talk to Joan Warren about my level of care they are providing me with and how upset she is about the whole situation. Joan Warren is mad and told her to get a lawyer.
*Leigh Anderson won't call Cheri back or answer her phone calls either. As of yet, Leigh Anderson hasn't talked to anyone of the family members regarding my care.
*My temperature is 97 degrees today. Maybe after my mother's talk with Diane B. ECMC will take care of my condition before sending me back to the nursing home. I don't want to be at ECMC anymore than ECMC wanting me there.
*Court is December 6th. Let's hope something gets done that day. My judge was not re-elected in the election. Wonder if that works in our favor.

Back To ECMC

2007-11-08T20:45:00.000-05:00

*I am back at ECMC because like I said before, although ECMC sent me back to the nursing home, the nursing home could not take care of my level of care because I was sent to the nursing home sick in the first place. Hopefully ECMC will get rid of my infection and I can go back to the nursing home because ECMC's ethical practices are non-existent to bounce me back and forth.
*Today was my father's birthday. He turned 66. I tried to sing to him over the phone, the Happy Birthday song.
*Diane B. told my mother irregardless of the fact that my mom is not legal guardian over me, the hospital still has the obligation to tell her what is going on and when. So when I got moved and the social worker would not tell my mother about it, that was not ethically right.

Nursing Home

2007-11-07T20:46:00.000-05:00

*So yes I did get moved back to the Alden Nursing Home the day after I got shipped to ECMC for the night.
*My mother has been working with my arms and I am beginning to move them on my own because, yes, they do hurt and I don't like it when she moves them, but they need to be moved.
*My brother Ken called Joan Warren like told to do to set up an appointment to get guardianship. She scheduled then called again saying she had to reschedule because "she was busy." These people take forever. They don't realize it takes one second to change your life but here they dittle-dattle with everything.

State

2007-11-06T11:45:00.000-05:00

*My mom called the state department of health yesterday because she feels that i am becoming dehydrated. The state said that they can look into moving me after the ping-pong fiasco last week.
*I cried for an hour yesterday-I am very upset. And no one comes to see me....

Letters again...

2007-11-01T17:34:00.000-04:00

*This is the letter my sister wrote and is sending out tomorrow to the lawyers and the hospital. Enjoy:

To Whom It May Concern:

I have sat back and watched what the hospital (Erie County Medical Center) and the lawyers on the guardianship case have done to my brother, Frederick Lascelles Jr. and I am appalled. Personally, I feel that it may be the case where the hospital has lied to the lawyers about things and the lawyers let go on, go on. They are not there every day, but my mother is along with numerous other people who go to see my brother. This is not even including the nurses who see him every single day. Even so, how can some one deemed his guardian let this happen.

I will give you an example. Yesterday, it was Halloween, October 31, 2007. I get to the nursing home that he got sent to on a whim. I went to bring him a pumpkin that he wanted. I arrive at the Erie County Home (Erie County Medical Center’s other nursing home besides the one they have directly inside the hospital) in Alden, New York. I am told by a nurse there that my brother has a severe lung infection and needs to get sent back to ECMC because they do not have the medicine to treat his infection. It is resistant to many drugs and only the hospital has the medicine to take care of it. That’s great I think, because he had been running a temperature of around 103-104 degrees. The nursing home doesn’t have the cooling blankets to bring down his temperature anyway. I have taken several college courses in Microbiology and things of this sort. So, when I was informed today, November 1, 2007, that he was getting sent back to the nursing home in Alden I was shocked. There is no way on the face of the planet that a severe lung infection that is resistant to common antibiotics can be cleared up over night. I was also informed by my mother who talked to an undisclosed nurse the night that my brother came into ECMC of October 31 that the social worker there that night had informed the nurse it didn’t matter what happened, he was getting sent back to the nursing home. The social worker did not inform my mother of this. It upset the nurse so bad she went home crying.

How can this be right in any aspect? What happened to the ethical part of the medical profession? Have we gotten so far deep into the bottom line that we can’t even take care of a young man who can’t take care of him self? The hospital doesn’t care about clearing up something that would take ten days at the most so instead they just ship him back to the nursing home to get sent back to the hospital in a few days anyway? Is this ping-pong that they are playing with my brother? The Hippocratic Oath states: “I will keep them from harm and injustice.” This I feel is very harmful to my brother what is going on. You cannot start to treat a condition with antibiotics or get shipped every 24 hours as they have done to him. He is supposed to be in critical care and they are doing this to him? You start to treat some one with antibiotics you do not just stop. The infection will become resistant to the antibiotics that way. What in the world are these people doing and what game do they think they are playing? I have had enough of this and want something done about this and not tomorrow or the day after, but right now. Something should have been done a long time ago. It should not have gone this far. With how long this case has taken I feel it has to do with "moral turpitude" and impedes the progress of justice. Besides, the Declaration of Independence states that all men are created equal to have life, liberty and the pursuit of happiness. The hospital and the court has all but robbed my brother of these rights and I feel that this should be addressed as well. Thank you for your time.

Reputable Staff? I don't think so...

2007-11-01T14:49:00.000-04:00

*The nurses seem ok for the most part at ECMC. Some of them really do try and they do care about their patients. My mother was informed by an undisclosed nurse at the facility that a social worker commented about moving me back to the Nursing home today irregardless of the fact that the infection that I have is not gone and will take a while to get rid of because the infection is resistant to many common drugs. The hospital does not care, they just want me and my family out of ECMC. Which, would happen if they stopped playing stupid mind games with all of us. Are they slow or something? The nurse tried to get an explanation out of the social worker as to why she didn't just inform my mother. The social worker just turned and walked away without answering the nurse. Apparently this nurse went home crying. This isn't right... this whole hospital is messed up.

Room Number

2007-11-01T01:34:00.000-04:00

*I am at ECMC now for I don't know how long depending on the lawyers and ECMC and the games they want to play-I am in room 1068 for anyone who wants to come see me.

Moved AGAIN.....

2007-10-31T18:27:00.001-04:00

*My sister made me a bat pumpkin. You can check out my MySpace page to see what it looks like.
*They informed me, my sister Jaye and my mother that I have to be transported back to ECMC because I have a lung infection that the nursing home can't take care of. They do not have the medicines at the nursing home for such things. Plus I have a temperature that has been consistently above 100 degrees. They do not have cooling beds/blankets at the nursing home. My MOTHER had to make it come down with ice chips, but it is still high at 99 degrees. I will update on what room I am in later on.

2007-10-30T23:12:00.000-04:00

*Today I had a 104 temperature. I cannot regulate my own temperature. If this nursing home cannot regulate or bring down my temperature I have to go back to the hospital.
*Tomorrow is Halloween and my sister is bringing me a pumpkin

Weekends...

2007-10-27T19:24:00.000-04:00

*Weekends may be a hard time for me. I don't really have anyone come see me. Doctors and such have time off... so I really don't get to see them either. I wish more people would come see me.
*I was quite upset today with everyone including my mother. Maybe this will help my progress along by getting mad, well that's what the therapists tend to tell me anyway.

Calls.... Therapists...

2007-10-26T22:47:00.000-04:00

*The physical therapist (Debra Bernier) from ECMC's nursing home in Alden, NY decided to pay a visit to my mother. She told my mother that because I had been in the hospital like this for over a year that they had decided to not do any kind of rehab on me whatsoever. That maybe they would do range-of-motion on me but that would be about it.
*My mother received a call from her lawyer explaining that we needed to get everyone from the family to go to court on December 2, 2007. They want to get rid of this case, including Leigh Anderson and hand over guardianship to the family again. Apparently the letters and calls we have been making is making a difference. Little difference, but a difference nonetheless.
*My temperature was a 100-101 today.
*My mother continues to work with me everyday to get me to try to open my hand and get moving because the physical therapists refuse to do work with me irregardless of the fact that Erie South told the family they would take me and do rehab with me.

Letters

2007-10-25T13:36:00.000-04:00

*Yesterday my sister Jaye sent out 7 letters to the lawyers and everyone that is on the guardianship case for me. She also sent out letters to the Attorney General-Civil rights bureau and the health care bureau.
*Yesterday my big brother Ken received a call from Ziegler. This man explained to him that they are trying to work things out and get me out to Lake Shore Hospital while working with the nation to help to get me better. He also informed my brother that if Leigh Anderson does not cooperate with us then there will be further investigation.
*Today I have 103 fever. The nursing home where I am informed my mother that I may have to go back to the hospital (ECMC) because I am worse than they had been told by ECMC.
*I have no tv in my room where I am now.
*The nursing home wanted my family to bring clothes and bar soap in for me. This should be done through my guardian.
*Today Ken went to see Joan Warren regarding the custody battle over me.
*My sister Tammy sent out for guardianship papers through social services to try to get guardianship back to the family. We are still waiting for the papers to come through.

Moved

2007-10-23T18:49:00.000-04:00

-Today I got moved to Alden Nursing home in Alden, NY.

-My sister Tammy received a call from the Attorney General explaining that the family needs to talk to the lawyer that was retained (Philip Milch) by the mother (Joan) to set up a mandatory meeting to discuss health plans for me which would include my appointed TEMPORARY guardian Leigh Elizabeth Anderson.
*Note: As of yet, Leigh Anderson has to call any one of the siblings back despite numerous calls by all members to have her call them back regarding his health status. She has also yet to inform the family members that I was going to be moved and where. Family members were informed by other lawyers. This shows a blatant disregard for the family members and lack of responsibility on her part. She avoids the family at all costs.

-My brother Kenneth called the Judge Rose Sconiers and asked to have her call him back.